Monday, June 19, 2006

Paul's Update - 06/19/06

Dear Friends:

PT came today. Paul walked from the bed to the kitchen sink and back. He seems to be getting somewhat better. She told Tabby that today was her last visit because Paul isn't advancing enough to keep coming out to the house. We could have the option to go to Prince William Hospital outpatient or wait until the meds get straightened out and call her to come back. OT came today as well. He seems pleased with the work that he is getting from Paul and isn't talking about discharging Paul yet. He worked at the kitchen sink to stand and balance. He stood at the sink and drank a glass of water too. Speech is suppose to come Tuesday. Since she hasn't really had any time with Paul she cannot make a judgment on his progress yet. Paul seems to be trying to communicate more with facial movement and hand movements. He also makes different tones when he says things. He has even said some things that sound like words. Tabby said he was holding Max yesterday and when the baby started to cry Paul said "quiet". It wasn't real clear but clear enough that she understood him. Also when she was showing him some presents that they received he smiled but was disinterested for most of it but she showed him something that he liked and he said "Oooo". He also has some times that he seems to just answer even if it is inappropriate ... he will nod yes to everything or shake his head "no" to everything. When I went to leave I waved to Paul. He lifted his left hand to his head and then did a salute. Wow ... we were all surprised ... this is a new interaction! Tabby talked to the insurance company. They finally found the order for the wheelchair. Evidently it hasn't been built yet ... so now we have to probably wait for another 6-8 weeks ... Sigh! Tonight Tabby will be keeping Paul us as much of the night that she can. The EEG is at 11am Tuesday and the doctor wants him to be "sleep deprived" for the test. I pray the this test will show normal brain activity.

Blessings, Lynne & Carl

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