Paul's Update - 09/12/06

Dear Friends

Today was a pretty good day. Dad got Paul up several times today. Mostly to go in and out of the bathroom but walking is walking! By the end of the day Paul was pretty tired and weak but he had quite a bit of workout. Tabby tried to call the neurologist today to find out if she could go ahead and eliminate the last of the Depacote. This reduction was going to happen on Thursday anyway so she decided to go ahead and eliminate it today. She hasn't heard back from the doctor yet (he isn't in the office on Tuesdays) but she suspects that he will want to start decreasing the Dilantin as well. Today was the day that Paul gets 400mg of Dilantin but tomorrow he will get 600mg so if the doctor wants to start a decrease that would be the time to do it. Dad will stay at Paul's house overnight for the next few nights just as a precaution. He's been doing this each week when they decrease his medicines. The first 48 hours after the reduction are the most critical time ... if he is going to have seizures that is the time when the medicines drop to the least effectiveness. Dad & Tabby installed some carpet on the stairs and the doorway landing today in preparation for the stair lift that is coming on Friday. It is indoor/outdoor carpet and it looks very nice. Everyone is looking forward to Paul being able to come upstairs. They are already preparing for the football game on Sunday!! :-) Today Max is three months old. Can you believe it?? He is growing so fast. Tabby thinks he may be teething a bit. He is also able to scoot around in the playpen and rolls himself over from his side to his back. There is talk of starting him on some cereal since he sometimes eats 6oz of milk then within an hour or so will eat another 6oz of milk. He has really been a source of joy for all of us! I hope to be able to send more pictures soon.

Have a great day!
Lynne & Carl