Tuesday, May 30, 2006

Paul's Update - 05/30/06

Dear Friends:

Today was a pretty good day. Paul is still sluggish from what we suspect is the drugs. Tabby plans to talk to the neurologist next week on what the options will be if he doesn't improve with this drug. Paul had his appointment with the orthopedist today. They removed the staples from Paul's foot. Now he will wear the hard plastic boot that he was given for about three more weeks. Of course the doctor always tells us he can weight bear as tolerated! Tabby had a good day. She got lots of errands done. Hmmm ... nesting?? Maybe! At least she will have those things done before the baby comes! Paul had an incident today where he tried to get out of bed by himself. Dad went outside to take a phone call (his phone doesn't work good in the house) and when he came back to the room Paul was on the floor in a sitting position. He doesn't appear to have any injuries from it but when asked if his arm hurt he nodded "yes". Dad had a talk with him to impress the importance of waiting for someone to help him. He really doesn't like being left alone. Bobby came down and helped get him back in bed. Speech therapist came today. She brought some pictures to make a picture board. She wants us to start making Paul use the pictures as response to us. Her feeling is that if all his needs are being met without him having to try, he won't try! We haven't heard from OT or PT lately. Hopefully they will get back on track this week since it is a little quieter than the last two have been! Many of you know our friend Linda Smith, she had surgery today and is recovering tonight in ICU at GW Hospital. Please keep her in your prayers as she recovers.

Have a great day, Lynne & Carl

Monday, May 29, 2006

Paul's Update - 05/29/06

Dear Friends:

Sunday was a great day. Dad got a call from Tabby early. She wanted to take Paul to East Coast Harley Davidson (Paul's work) to see the bikers gather and roll out for Rolling Thunder. This is an annual event where bikers come from all over the country and ride into DC to honor veterans of war. Paul wore his work shirt and all his coworkers were glad to see him. He seemed to enjoy the environment and even smiled quite a bit. After they got home Paul took a nap. He was pretty exhausted. Tabby's parents came to visit. They had planned to go out to eat at Sakura Japanese Steak house in Fair Lakes to celebrate Mom's birthday. We took Paul's van. Tabby pulled the van next to the curb in front of the house with the hope that it would put Paul up high enough to reach the seat. Unfortunately the van sits up higher than Dad's truck (Paul can get in Dad's truck this way). Dad asked Paul if he could put his foot on the running board. Paul lifted up his left foot and helped Dad hoist him up into the van!! WOW! It is amazing what he can do sometimes! Dinner was good ... Paul ate lots of food. When we got home Paul was able to sit outside and enjoy the beautiful day.

Monday was a quiet holiday. Paul wasn't feeling good today. It appears that he may have a urinary track infection and he spent a lot of the day in the bathroom or in bed. Dad got him up for dinner tonight but most of the day he stayed in bed and watched the Sci-Fi channel. Dad is having some trouble moving Paul around. It appears that the new medicines are making Paul drowsy. Hopefully he will get use to them soon and be back to himself again. Tabby is having more braxton hicks contractions. It looks like Max is getting ready to make his appearance very soon. Tuesday is the appointment with the orthopedist. He will take out the staples in Paul's foot.

Have a great day! Love, Lynne & Carl

Saturday, May 27, 2006

Paul's Update - 05/27/06

05/27/06
Dear Friends:

Today was Paul's first full day at home. He still seems very tired and spent a lot of the day in bed but he is responding to us and is eating very well. Being home always seems good for him. Dad & Tabby took Paul to Starbucks this morning. He had his regular coffee and enjoyed the trip. He was pretty exhausted when he got home so Dad put him in the bed and asked him if he wanted to watch TV ... he shook his head "no" so Dad turned the light on low and let him rest. Carolyn and I worked to get the baby's room organized so it will be ready for when Max is born. Dad hung a cabinet in there for storage and he also put some plywood planks in the attic so we can store some of the things he won't need right away. It looks like we will have a quiet holiday weekend! We will probably all be together at Paul's house. We are thankful that we are able to spend time together!!

Blessings, Lynne & Carl

Friday, May 26, 2006

Paul's Update - 05/26/06

Dear Friends:

It appears we are back on track. Paul had a good day. He had a somewhat annoying roommate who complained about everything. Tabby had already decided she wanted to push to have Paul released today if possible. She started trying to reach the doctor first thing this morning. She finally saw him at 1pm and he agreed that it would be good for Paul to go home. Paul now has to take a new medicine to prevent seizures. The transport was ordered to come between 4 & 5pm. He was home by about 6pm. He seems to respond to questions again and when he was asked if he wanted to go home he nodded "yes". Tabby said that he mouthed the words "I love you" today. Otherwise he was pretty tired and slept quite a bit. Hopefully we will be able to tell if there was any setback from the seizure in the next couple of days. He will go back to see his neurologist on June 8. He also has an orthopedist next Tuesday for the removal of the stitches in his foot. Tabby also got a call from the agency that will do the customization on the van. She will take it to them on June 6. Tonight Dad & I went out to eat dinner with some friends. Bobby stayed home with Tabby & Paul. It was nice for Dad to be able to get away for an evening. It is easy to see why you could get burned out trying to care for a loved one 24x7. We are so blessed to have family that works together for the best recovery Paul can have! As always, thanks for your prayers. God has gotten us through another very tough event!

Have a great holiday weekend! Lynne & Carl

Thursday, May 25, 2006

Paul's Update - 05/25/06

Dear Friends:

As we've known from the beginning of Paul's ordeal ... just when things are going well...we can expect ome kind of set back. Wednesday was such a day. The seizures that we had feared and were able to escape for nearly seven months finally occurred. Paul had been having a very good day. His speech therapy went really well and we set some goals for what we would like to see him achieve with her. After dinner he had been up some and even went outside for a while. About 9:00pm he was resting in bed and watching TV. All seemed normal and good. Without any warning he began to have a seizure. Here is a synopsis of the events of Wednesday night as Bobby wrote in his blog:

Well, it's almost 4am, and I just got home. It has been a terrifying evening ... It all started around 9:15pm, with my sister Carolyn screaming up the stairs yelling for me. "Paul's having a seizure!" I scramble down the stairs to find Tabby in hysterics, on the phone, and Dad holding Paul over on his side. I've only been that scared one other time in my life, and this was worse. I realized Tabby was on the phone with 911, and hyperventilating so bad, I couldn't understand her (she'd been going through labor pains all afternoon). I took the phone away from her, gave the 911 operator our address, appraised them of the situation as:
  1. My little brother has a recent history of Traumatic Brain Injury, and is currently having a seizure (to my left) and
  2. My sister-in-law is nearly 9 months pregnant, hyperventilating, and may be having a baby. (to my right)
Thankfully we are only 3 minutes away from the closest fire station, and 2:59 seconds later, there are 13 people in our house. By the time they got there, Paul was no longer seizing. It's hard to explain to EMTs that it's normal for him not to be able to talk, and to only be able to respond 80% of the time. Tabby was still in a bit of a full blown panic because she couldn't see Paul from where she was, surrounded by EMTs of her own. They decided to transport Paul, and as they carried him past her she damn near pushed her way through the EMTs demanding to stay with him. Both were transported to Prince William Hospital. Paul seemed to be okay even as they were transporting him and for the first half an hour or so while he was at the hospital. He seemed to be coming back around, and was doing better and then bam three more seizures, the fourth one being the longest. The sedated him heavily with anti-seizure medication and informed us that they were gonna keep him, at least through the night. Cat scans came back showing no change, so they feel that the seizures were relatively harmless, but said he was so doped up that he might not wake up until Friday.

Tabby finally agreed to get checked out by the OB at Prince William, who said that there was minimal dilation, and that the baby was just now moving into it's downward position, meaning that she wasn't gonna have the baby tonight, but it won't be much longer.

Paul is now in the ICU at Prince William Hospital, where the plan seems to be to keep him for a couple of days. Seeing him before I left, even as doped up as he was, he seemed to be having a horrible nightmare. His eyes were closed, but he was moaning a lot, and seemed to be trying to sit up. Tabby decided that she needed to come home. She was still in a great deal of pain. She took a shower and seems to be resting comfortably now. We get to go back to the hospital tomorrow so she'll need her rest. I gotta tell you, we were warned that seizures were a distinct possibility with Traumatic Brain Injury. We thought we had prepared ourselves, but nothing can prepare you. He seemed fine, Tabby leaned in to kiss him, and he clinched up, started shaking violently, began to foam at the mouth, clinched his teeth, and began to hyperventilate.

Everything was going so well, he seemed to be doing great, and now it just feels like we're back to square one. We don't know how he's going to come out of this. Will he be worse, will he be better, will he be the same? Will we have to start over? We just don't know.

If there was ever a time we needed prayers, this is it. I'm trying to stay strong, and trying to stay positive, but I gotta tell you ... I'm a terrified, nervous wreck underneath.

Today was much better. Paul slept most of the day. He was awake some and seemed to recognize and respond to us. Tabby had an OB appointment this morning and the doctor said she is now 90% effaced (which means the cervix is thinning and she has started dilation). She had dilated about one centimeter and the doctor said the baby could come any time in the next few days. She has another appointment to see the doctor in a week but he doesn't believe she will make the appointment. She is comfortable and the pains have stopped for now. Tonight when we went back to the hospital to see Paul he was awake and had eaten a little of his dinner. He was pretty sleepy and kept falling asleep so he didn't eat it all. Dad was able to get him some jello, graham crackers & orange juice from the nurse around 9pm and he was able to eat most of that. He has been responding almost like before the seizures. He was moved from critical care to the primary care unit down the hall before we left tonight. He is at Prince William Hospital in room 2216. We are hoping he will be stable enough to go home either late tomorrow or Saturday morning. It looks like he will be on anti-seizure medicines for a while. I am constantly amazed the people that God places in our lives. Paul had a male nurse tonight that bought his motorcycle from the shop that Paul worked in. He wasn't sure he knew Paul but before we left tonight he had called his wife to have her bring his DOT approved helmet to him. Paul's story is a strong message that you cannot be TOO safe when riding a motorcycle! Please continue to keep Paul in your prayers ... I believe this experience is just another part of the healing that Paul's body is doing!

Love, Lynne & Carl

Tuesday, May 23, 2006

Paul's Update - 05/23/06

Dear Friends:

Paul seemed a bit better today. Dad & Tabby took him to the Gastroenterologist today. The doctor said that Paul's the biopsy of the esophagus didn't show any precancerous lesions. He wouldn't recommend surgery for the hernia at this time. He changed the medicine from Nexium to Previcid. Hopefully that will help with the indigestion Paul is having. Paul ate real well today. He actually got full a couple of times. It appears that he is finally aware that he is full. Dad worked to install a new set of attic stairs yesterday. He had to move the attic fan that was in the hallway in order to install a wider doorway to the attic. Today he had to reinstall the fan. Tabby has some things that she would like to store in the attic but the opening was not large enough for her to get the boxes up there and it was just an opening that had no stairs. There is lots of room in the attic and there are boards for flooring up there. The new stairs will make it much easier for her to get up there. Tabby spent most of the day caring for Paul since Dad was busy. She said he did real well today. He was in bed quite a bit again today so he doesn't damage his foot before it can finish healing. Someone asked Dad yesterday what Paul's level of improvement is ... we can most definitely say that he improves a little EVERY day! We continue to see evidence of a "miracle in progress". God has blessed us in so many ways. Wednesday the speech therapist will begin working with Paul. Hopefully we will start to see verbal improvements very soon. It would be very nice to be able to hear him speak and know the things that he is unable to communicate to us now! We cannot complain though ... we have so many blessings to be grateful for!

Have a great day; Lynne & Carl

Monday, May 22, 2006

Paul's Update - 05/22/06

Dear Friends:

Dad got to Paul's house this morning to find that the substitute CNA that was suppose to cover for our regular CNA never showed up. When Tabby tried to call the agency to find out why she wasn't there she found that the office doesn't open until 10:00am. Tabby was suppose to go to work at 6:30. When she finally got someone on the phone they said the substitute was suppose to be there at 7:00am. The agency tried to call the girl and found out that she had an accident last night and wasn't coming. It was too late in the day to get someone else so Tabby ended up taking a day off. Thank goodness our regular girl will be back on Wednesday (she had a doctor appointment today). Dad was getting Paul up today by having him grab Dad's hands and pull himself up. He did really good at that. Later in the day Dad decided that he would see if Paul could get up by himself. Dad got him to the edge of the bed and told Paul to try to stand by himself (while Dad was there to catch him). He stood up without grabbing Dad's hand. Dad had to catch him once he was standing since he still doesn't have good balance. This is the first time he's stood up unassisted since his accident! He's been trying to get up ... and he fell out of bed the other night ... evidently he wants to get up! Dad took Paul outside this afternoon since it was such a beautiful day. Dad asked Paul if he needed some sun glasses and Paul nodded "yes". Tabby handed him her sunglasses and he took them in his hand, flicked them open and put them on his face by himself!! This was another "first". It is amazing what he can do when he wants to!! Paul also used his right hand to help pull up his pants today. He is trying to use it more and more. It is still weak and he can't do a lot of things with it ... but he IS trying! The neighbor came over this evening when she got home from work. She took the van to the GMC dealer to see if anything needed to be done on it. Tabby had gone there before and helped her neighbor do some work for the dealership so they knew her already. They looked it over real good and then did several hundred dollars worth of work on it for free!! What a blessing! They said that Tabby got a really good deal on this van! We think so! Hopefully, next week we will take it to have the hydraulic seat lift put in. The visiting nurse came by today and said the incision on his foot looks real good. She remarked that everyone at her office is very impressed with the care that Paul is getting. Of course we don't think we do anything that anybody else would do if it was their family member ... but I guess that isn't always true! Wednesday we should have a speech therapist coming. It is the first speech therapy Paul will have had since we left Mount Vernon ... six weeks ago!! Today I heard from our dear friend Mary Jo whose mother was in the hospital at the same time we were there with Paul. She has had a long recovery from her injuries and she has struggled with one thing after another. Please pray for her as she has had yet another setback. Thanks for all your love and prayer!!

Blessings, Lynne & Carl

Sunday, May 21, 2006

Paul's Update - 05/21/06

Dear Friends:

OK ... so much for my alternative email source ... oh well! It was a pretty quiet weekend. Friday Paul went to the ophthalmologist. She had a hard time doing most of the testing that she wanted to do since Paul doesn't really respond in ways that help do a visual evaluation. She was however able to dialate his eyes and surprise ... she found something. In his right eye she saw a large blood clot and there was a smaller one in the left eye. They are both being reasorbed by his body. She felt that they would give him fuzzy vision and at one time he probably couldn't even see out of the right eye. It was apparent that nobody had ever looked in his eyes since nothing was noted in his medical records. She said that he may have cut vision or even double vision but that it may get better. She wants to see him in about 4 months to re-evaluate him. The transport was difficult since the transport agency called Tabby a half an hour before time for them to pick Paul up to say the person that was suppose to come backed out and they didn't have anyone to transport him. Dad ended taking him in his truck. It was difficult because Paul's foot was still pretty sore from he surgery two days previous. Dad & Tabby didn't want to cancel the appointment since it is important for us to know what vision Paul has and what could be possible symptoms of problems visually! Saturday and Sunday were very quiet. Paul seems to be still having some pain from time to time. He doesn't want to put any weight on his foot so Dad didn't move him much. Today (Sunday) he put a little more weight on it which makes it easier to move him. He is now wearing the big air cast that he had after his original foot surgery. He will wear that for about a month. This evening Tabby worked with Paul to do a ten-piece puzzle. It was one of those puzzles that has pieces that fit in a spot that is the same shape as the picture. It was a puzzle of Tools. He took out each of the pieces when Tabby asked him to. She would say "take out the hammer" or "take out the wrench" and he would do it. Then once all the pieces were out of the board she asked him to put them back piece by piece. It took quite a while and he seemed exhausted about half way through. Tabby said "you can do this" and he shook his head "no" ... then she said "yes you can ... I know you can" and he shook his head "no" again. He seemed pretty frustrated and convinced he couldn't do it. Tabby persisted and finally he did finish the puzzle! Later in the evening we were all sitting in the kitchen while Paul was resting in the bedroom. Tabby had his door closed and the light off. She went to check on him and he was awake and trying to get out of the bed!! It was as if he wanted to come out to be where we all were! Monday is the follow-up appointment with the Gastroenterologist. He will give Tabby the results of the tests he did on Paul's stomach and advise her on what he thinks should be done about the hiatal hernia that Paul has. Hopefully we will hear from the speech therapist to set up a time for her to come!

Have a blessed day! Lynne & Carl

Thursday, May 18, 2006

Paul's Update - 05/18/06

Dear Friends:

Today was a pretty quiet day. Paul cannot put much weight on his foot yet so he stayed in bed a lot. He had quite a bit of pain today so Dad gave him pain medicines. He had an incident with choking on his chicken this afternoon. It scared Dad but he managed to get it dislodged by himself. Tonight Dad gave him Chinese food and he did ok with that. He ate in bed tonight and Tabby fed him so he didn't make a mess. The doctor told Dad & Tabby that when Paul gets out of bed he wants Paul wearing the hard boot that he wore after the first surgery. He will have to wear that for a month. For now he has a surgical wrap on his foot which the hard boot doesn't fit over so he is wearing a surgical boot which is soft with a rubber bottom. He cannot put any real weight on it. This makes it hard for Dad to move him around. Paul's foot is pretty sore and he lets Dad know it when he tries to stand up. The doctor said he wasn't able to get all the pins out. He left two of them in the top of the foot. They shouldn't cause any problem to just leave. Dad got the plate and the pins to take home. Tabby didn't understand why Dad wanted them ... but he told her "it's a guy thing ... Paul would want them!!". Bobby agreed when he heard about it ... LOL. Tomorrow a transport will take Paul to the ophthalmologist. He has a 9:00am appointment. After the appointment Dad & Tabby are going to take the new van to a place that coverts vans to make them handicap accessible. Hopefully they will be able to do this conversion and do it in a timely manner! It will be so much nicer when he has a vehicle that is easier to get into. I will be out of town for the next couple of days. Bobby has agreed to do updates while I'm gone. I will be back on Sunday. Have a great weekend.

Love, Lynne & Carl

Wednesday, May 17, 2006

Paul's Update - 05/17/06

Dear Friends

The transport came to get Paul at 6:30 this morning. They arrived at the hospital around 7:30am. The pastor came to visit prior to surgery. Paul went in for pre-op around 9am. The surgery was scheduled for 11:30 but the doctor was doing another surgery and didn't get done on time so Paul's surgery didn't start until around 1pm. Everything went well and they took him to post-op around 1:45pm. The transport came to pick him up around 5:30pm ... which put them in rush hour traffic!! The driver (according to Dad) was whipping in and out of the traffic which caused Paul to get sick along the way. Needless to say if he is experiencing double vision and nausea already ... all the motion was going to make him sick!! Once they got back home and back in the bed Paul was exhausted and went right to sleep. He was up a few times but has been mostly sleeping. The doctor prescribed some Percoset for pain and I'm sure that is making him sleep. Dad stayed there to spend the night in case Tabby needs help during the night. Overall things went well and now we will have a couple days of rest for him to recover. The doctor doesn't want any weight bearing for a while which will limit what he is able to do. We are thankful that the surgery was successful and we pray that it will be his last surgery. Thanks for all your prayer ... God continues to heal Paul daily!

Love, Lynne & Carl